Today was Kayden's follow up appointment with his neurologist after his MRI and EEG. There was some good news...both tests were normal! Yea! The bad part is that there is still no explanation for the leg and arm tremors he's been having, along with a few other problems. The Dr. said the tremors could possibly be what are called "essential tremors". He gave me a prescription for Propanolol (Inderal) to see if it will help the tremors. The Dr. also said that his pyruvic acid levels are still high, which could point to a mitochondrial disorder, but he's not sure. We've had three of these blood tests already, all have been high. He wants us to do another blood test to check it again. If it's high, they will probably need to do a muscle biopsy, which doesn't sound pleasant.
I am having issues with starting him on medication for what the Dr. thinks "might" be wrong. I worry about side effects and know that some meds even change personalities. I would hate for this to happen. Do you have any insight on problems such as these? I would love some input if you do.